Tag Archives: caregiver

Heavenly Message From Our Earth Angel

Posted on April 29, 2015 by Tom Laughon
2015-04-28 21.47.58

Our very own Earth Angel

Two nights ago my mobile device let me know, in no uncertain terms, that it had received a message on my behalf. My first reaction was to be mad at who messaged me, and my second was to be mad at myself because I hadn’t put my message signal on mute. Damn the world and damn me!

Melissa and I had rushed home after a visit next door with mom and her live-in caregiver, Carolyn, aka our earth angel. We were eating a quick fix dinner in front of the TV because “The Voice” was on. And, we really love that show. I repeat, we really love that show. In fact, we tell our clients, students and everyone in our friendship circle that they can call us anytime day or night … except the nights that “The Voice” is doing its thing. That is a nonnegotiable-no-no, plain and simple.

But, when I saw the message was from Carolyn, I immediately focused on it. Even though Carolyn and mom were right next door, I knew I had to read the message. You never know what it could be, so your whole body goes on high alert.

So, with “The Voice” in the background, here was the message tree as it unfolded:

Our Earth Angel: What a nice visit tonight! It’s amazing to see the impact you have on your mother. The human spirit … wild!

Have a good night.

Mortal Me: Now you’ve done it, Carolyn … your kind message has my tear ducts working overtime. 

How do you expect me to watch “The Voice” with massive tears in my eyes?

BTW, from now on, if it’s not an emergency, only message me during commercials.

(Whoops … I meant to be funny, but maybe it came off as a bit harsh. I sure didn’t mean to ruffle any feathers. I better message back quickly.)

Mortal Me: By the way, you will never know just how much your message means to me.

(Oh, my God, yes you will. You are an angel. You know everything about our family and more.)

Thank you, thank you, thank you … and most of all thank you for being you! Like I said, you are an angel … our genuine, one-of-a-kind, Earth Angel.

(Even after this message, I felt I still needed to make sure our Earth Angel knew how much we appreciated her and her original message. I only paused long enough to ask Melissa who didn’t garner enough digital votes to make the night’s final cut on The Voice. She assured me all of my favorites would live to perform another day, so all was right in my world.)

Mortal Me: OK, Carolyn … I am having second thoughts … with messages like the one that kick started this conversation, you may message or call me anytime … day or night, 24/7/365 (Yes, even if/when “The Voice” is in full swing.) Operators standing by!

(That had to do it! I was bee-lining it to the kitchen to create the world’s greatest caramel sundae for me, myself and I. I was a happy dude. Whoops … there’s the signal … another message!)

Our Earth Angel: Laugh on!

You and Melissa are a blessing to me. This arrangement has helped me to rediscover so much about myself. I was at a major crossroad last year, and now life is so much clearer. Thank you for the opportunity to care for your mother. This is truly a God Thing!

Good night.

(At this stage, I knew I didn’t need to message back. After all, she is our earth angel. She hears my heart and my soul. She cares for all of us.

All I had to do was whisper, “Good night”.)

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Sun, Sun, Sun, Here It Comes

Posted on March 29, 2015 by Tom Laughon

Little darling
It’s been a long, cold, lonely winter
Little darling
It feels like years that it’s been here

2015-03-29 16.58.42

I’m celebrating and commemorating my little darling’s epoch-making 95th winter almost ending and 95th spring almost beginning with two exclamation points!!

I thought about doing it with ninety-five exclamation points, but that would be a little over the top. So, I’ll just silently count ninety-five of them, point by point, as they prance and dance around in my head.

This has been one mighty long, cold winter and mom, as usual, has been a mighty warrior standing up to Old Man W.

Mom may have had the sniffles a time or two, but she never missed a day at Circle Center Adult Day Care. She has traveled by wheel chair from her home to her waiting chariot, to Circle Center and back in rain, sleet, snow, wind, and cold, cold, cold!

Did I mention cold?

She never complained, never hid under the covers, never did anything but get bundled up and go like a windup toy. How many of you can hold a hand up and count yourself as one with mom?

Mom is tough stuff. Even with a father who started his career in medicine as a horse and buggy doctor, she never took advantage of it. She never got sick.

Do I hear an exclamation?

Exclamation!

Amen!

Little darling
The smiles returning to the faces
Little darling
It seems like years since it’s been here

I smile every time I’m with my ninety-five year old little darling, because she always smiles at me first. And, when she smiles, I smile. It’s as simple as that. It can be cold as ice or hotter than hell … I know I’ll get a smile out of her, guaranteed!

For the rest of the us, spring will be heating our lips up enough to have smiles returning to our faces, but for mom, that patented smile of hers never left.

That’s ninety-five, unstoppable, smile filled years … yep, you guessed it … !

For mom being a smiling mom through thick and thin, I brought her a handpicked daffodil.

2015-03-29 15.24.38

Little darling
I feel that ice is slowly melting
Little darling
It seems like years since it’s been clear

No matter how promising it sounds when the Beatles sing their song, Here Comes the Sun, ice slowly melting is not nearly fast enough for me.

Today, I had to bundle up and replace a dripping outdoor water spigot (funny word) at mom’s. It was making unwanted icicles, and and adding unwanted expenses to the water bill. How cold was it? So cold that I was one of only a handful of people who braved the cold to be in a Walmart … that’s how cold (time for another exclamation)!

Two days ago, Melissa and I were hiking in the Blue Ridge mountains, experiencing spring springing up on one side of the mountain, the same time it was snowing on the other. Even the wildlife looked confused.

Tom Spring Springing Melissa Spring Springing Spring Springing Tom Melissa Snow Mountains

Here comes the sun
Here comes the sun
And, I say, it’s all right

Mom is still aware of the seasons. In the winter she points to trees and calls them naked. It the spring and summer, she knows they turned over a new leaf. She likes to have the window cracked just a bit when she is in the car. She loves the feel of the warm breeze.

Having spent the majority of my life in the Sunshine State of Florida, I love the sun. In fact, it was one winter, after a long career in Richmond, that was the straw that broke one frozen camel’s back and sent me packing back to Florida for seventeen years before coming full circle back to Richmond to care for my mom and sister.

Call me crazy, but I’ll take light over dark any day. And, I’ll take warm over cold the same way. The only places I really love ice are in my tea, my cocktails and when it’s cooling off a cooler full of beer.

So, again I look up to the lady who has been shorter than me for most of my life, that little stick of dynamite, my mom. My little darling, mom, is a mom for all seasons, but as for me, I’m a sunshiner!

Sun, sun, sun, here it comes
And I say, it’s alright

Sunshine Daffodils

 

 

 

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Mom, Old Man Winter & Me

Posted on March 8, 2015 by Tom Laughon

Mom, Old Man Winter & Me

As you can see from this picture taken a couple of days ago, after another Arctic blast dropped temps to the mid-teens, my mom is a champ!

Even with all the ice, sleet, hail, wind and cold Old Man Winter has thrown our way, mom has never missed a day at Circle Center Adult Day Services (except the days they’ve had to wave the white flag)!

And, like she taught my sister and me, she has never complained … not one little bit.

In full disclosure, I have missed a few snow days this season myself. It’s been pretty brutal.

Since I don’t believe Old Man Winter knows who he’s up against, I am sharing my open letter to him as a bit of a Winter Warning.

Old Man Winter,

Counting this one, my mom has faced off with you for 95 seasons that have shared your signature.

As you can see by her smile, you haven’t frozen her out of competing head to head with you yet … and you never will.

In fact, both of us laugh in your face!

You hear what I say, Old Man?

We laugh in your face!

Between Spring, mom and me, we will kick your ice!

Enough is enough,

Tom & Mom

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First in Flight

Posted on March 1, 2015 by Tom Laughon

Who knew rag dolls could fly?

Mom’s most perfect of pitches (that had me in stitches) is picture proof that she launched Madeline, the very first rag doll ever, into space!

This slideshow requires JavaScript.

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Mom’s Short Glory Story

Posted on February 23, 2015 by Tom Laughon

Me:

Mom, who is Jesus?

Mom:

Jesus was a little boy.

His dad was God.

God told Jesus, “Always do the right thing. And, after you do the right thing, do it over and over again, but even better.”

That’s it.

Me:

That’s it!

 

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Don’t Say I Didn’t Warn You

Posted on February 21, 2015 by Tom Laughon

mom bites blog picMY MOM BITES.

And, she throws a mean left hook. Oh, and while I’m at it, I might as well share the bark part. She barks out words I never, ever heard her say in my entire life (my worst fear is that she may have picked them up from me).

There, I’ve said it … my mom is my little stick of dynamite and should come equipped with a warning sign.

I’ve been told it’s the disease. I have been told it is a primal place she goes when she feels threatened, agitated or confused. I have even been told she has a mean streak. Dementia, old age, constipation, the next stage, whatever … warning, warning, warning.

Now, before you go back and reread all of my blogs and say they were a cover up, or made up, or not on the up and up, please know they are all true. But, so are the things I am describing in this blog.

Mom in a Blanket

Shhh! Let sleeping moms lie.

Most of the time mom is indeed a joyful person. Most of the time she is cooperative and appreciative of those of us who are lending her a hand. Most of the time she lulls you into believing it’s going to be all of the time, but it’s not … and the change, more often than not, occurs without warning.

People who care for my mom love her.

People who care for my mom are wary of her (remember that mean left hook).

And, I am by no means the only one experiencing all of the above. I have friends who I met in the Circle Center Adult Day Care support group who are also primary caregivers for a loved one, At times, my friends look more challenged than who they’re caring for.

No one I have ever known looks forward to waking up in the morning (or middle of the night) to be bitten, hit, or barked at … especially by someone you love.

And yet, when caregivers share their stories with each other, they/we always express that we feel guilty for the way we feel. Or, feeling it must be something we’re doing (or not doing) to provoke the behaviors we’re on the receiving end of.

So, we just take it.

TOM’S WARNING: Caregiving is not for the weak of heart. You must be damn tall to ride this ride.

WHAT IT TAKES.

It takes courage.

It takes willpower.

It takes conviction.

It takes love.

And, if you are not careful, it takes you out.

Word to the wise: TAKE CARE!

Never forget, caregiving is a give and take proposition.

The problem is, we give so much, we forget the mission critical importance of the take part.

Caring for yourself and letting others care for you are the keys to your sustainability.

This is not a sprint … it is not even a marathon … it is a run for your life!

TAKE CARE!

Take time outs.

Take time for yourself.

Take memories.

Take a cry.

Take a laugh.

Take hugs.

Take a hot bubble bath … make a that a double.

Take help from yourself.

Take help from others.

Take care whenever and wherever you can get it and never feel guilty or unworthy.

Take guilt and the feeling of unworthiness and throw them away.

Take pride in what you are accomplishing and applaud the courage it often takes to meet the ever changing, always rearranging needs of your loved one.

Take whatever it takes to protect your individuality and your right to make a life for yourself.

Never forget … caregiving is a give and take proposition. If you do forget, it will come back to bite you.

For every give you give, make sure you take a take.

We’ve all heard the familiar mantra of the airline flight attendants during their pre-flight instructions, “…make sure to put the oxygen mask on yourself first before attempting to help someone else put on theirs.”

The question is, are you are listening?

Make this your mantra!

TAKE CARE!

Serenity Prayer

“God grant me the serenity to accept the things I cannot change, courage to change the things I can, and (the) wisdom to know the difference.”

 

 

 

 

 

 

 

 

 

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What Are The Odds?

Posted on December 31, 2014 by Tom Laughon

To one who has faith, no explanation is necessary. To one without faith, no explanation is possible. – Thomas Aquinas

Mom, Me and Cake

I must admit, I was down to the wire when it came to writing and posting my last blog for 2014. I knew I wanted to commemorate mom’s 95th birthday which was on Christmas day, and yet I really didn’t have a concept in mind. The only thing I had going on in my head was the image of Father Time trying to hand off his duties to a mere child. I had to work fast!

TICK TICK TICK was reverberating throughout my entire body. How could anyone write a blog with this much pressure and racket going on?

TICK TICK TICK.

TICK TICK TICK.

My goal … beat Father Time before he beats me and the kid takes over. Stop that damn TICK TICK TICK any way I could became my battle cry. So, I came up with what was a bit of a cop out. It would be down and dirty and hopefully somewhat engaging.

I took mom’s age … added it to mine … subtracted the total from 2014 … and came up with the year 1848. Then, I googled “what happened in the USA in 1848”.

The TICK TICK TICK provided the back-beat as I quickly read Wikipedia’s answers.

Before I share, don’t tune out until you read the last one.

TICK: Discovery of gold prompted the California Gold Rush

TICK: Construction began on the Washington Monument

TICK: Gas lights were installed in the US Capital

TICK: Wisconsin was admitted as the 30th U.S. state

TICK: Zachary Taylor was elected President of the United States

TICK: John Quincy Adams, 6th President of the United States from 1825 till 1829 (born 1767), passed away

TICK: The Shaker song Simple Gifts was written by Joseph Brackett in Alfred, Maine

STOP THE CLOCK!

This last entry wouldn’t even connect with most people, but to me, it meant everything.

What are the odds? The very first blog I wrote on May 22nd, 2011 was titled “A Gift to Be Simple” and featured the lyrics from Simple Gifts.

What are the odds? My mom’s and sister’s favorite song was Simple Gifts. They learned it while cutting silhouettes of Shakers (past and present) in Shaker Village, Pleasant Hill Kentucky. They sang the song all the time … it was not only their favorite song, it was their mantra.

What are the odds? On July 30th, 2011, I wrote another blog titled “By Turning, Turning We Come Round Right” … part of the lyrics to, you guessed it, Simple Gifts.

It featured a video of my mom, sister and me singing Simple Gifts. It is one of my greatest treasures, because my sister passed away of Alzheimer’s at only 64 years old in April of 2011.

What are the odds? This was the last video ever taken of my sister.

What started out as a desperate and arbitrary attempt to beat Father Time at his own game had me weeping.

Without warning, time went into rewind mode.

It was Christmas day. Mom was on the receiving end of her cake. It featured two candles … the numbers 9 and 5.  Mom’s 93rd birthday was the last for individual candles … after that year’s experience, we felt any more candles would be a fire hazard, especially in her house that was built in 1796.

What are the odds? Mom has lived to be 95! But, if you ask her, she’ll say she is six, ten or twenty-two.

What are the odds that mom’s two granddaughters (my daughters), her two son-in-laws, six great grandchildren and my wife and I would all be here … on her actual birthday to celebrate with her?

2014-12-26 13.34.52

Happy birthday, Mom!

Fast forward … Happy New Year, everybody!

 

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Hysterical Historical Holiday Solution

Posted on November 25, 2014 by Tom Laughon

Guest blog by my wife, Melissa

Kenzie & Helen

Kenzie & Helen

Every year, we celebrate Christmas with Tom’s daughters (Tovi & Lissi), their husbands (Ty & Chris) and the six grandchildren (Thomas, Patrick, Fisher, Livi, Kenzie & Tyli) between Christmas and New Year’s.  Tom and I really get into the planning and have created some fun traditions for “Christmas RVA” that we know are on the kiddos “must do” list each year.

Every morning starts off with a hidden clue as to the magic the day will hold.  And, once all the kids are awake, they look for the clue, decipher it and announce the day’s plans (ex: outdoor ice-skating downtown, hot chocolate at the Jefferson Hotel, The Tacky Light Tours, etc.)  And, each year, in honor of Helen, the kids help plan a birthday party for her and decorate the cake.  She’ll be 95 this year! As of last year, we had to stop using individual candles as we were awfully close to a fire hazard at the 93rd celebration!

And, each year, we try to continue Helen’s legacy and love of history by sharing some of the experiences we know she would create for her great grandchildren if she could.  Last year, we visited Mount Vernon and the year prior, Monticello.  This year, we were considering Williamsburg (Note: For those of you who know Helen, you can rest assured we haven’t waited this long to share her love of all things colonial …  we all know and love Williamsburg dearly, but not everyone has seen it casting its candlelight spell during the holidays.)

Last year, the stars aligned and we were able to celebrate together for 6 days.  This year, we’ll have to condense our plans into 3 days which we anticipate to be quite the challenge.  So, this past weekend, we drove down to Wilmington to celebrate Lissi’s birthday and help with Tovi’s move, so we decided to do a little research with the kids.  Which activities would make the cut?  Ice skating and opening presents tied for first.  The “historical” trip ranked low (although they all said yes to Williamsburg if we had more time).

On our last night, as we were gathered around a fire at the Heffron’s and were revealing the results of the kids’ poll with Tovi & Lissi, we shared our dilemma.  Tom and I would have to find a way to fit in the historical experience because we knew we had to make Helen proud.

As everyone considered possible solutions, Kenzie (age 9) piped up with a straight face, “Helen’s historical.”

All eleven of us looked over at her and busted out laughing in unison … problem solved!

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Get the Picture?

Posted on November 18, 2014 by Tom Laughon

“Family members of someone with dementia grieve not only the loss of the person they know, but ultimately the death of someone they don’t know.”

– Amy Tucci is president and CEO of the Hospice Foundation of America

(No Picture Needed Here)

While skimming the newspaper this morning, I came across an article by Amy Tucci.

Anything and everything about DEMENTIA and ALZHEIMER’S  screams out at me and stops me in my tracks.  So, even knowing I was about to leap headfirst into disturbing territory, I don’t mind telling you, Amy’s opening line caught me totally off guard.

After reading and rereading it, my immediate reflexive reaction was to grab a tissue and use it to soak up the tears that seemed to come out of nowhere. It ended up being a three tissue, crying-up-a-storm, event. I halfway expected a TV weatherman to appear and issue a warning to everyone in the world to take cover.

After what seemed like forever, the dark clouds moved on, and I was able to take the proverbial three deep breaths. The next thing I did was to try and get my arms around why that opening line packed the punch that it did, after all, I am a seasoned caregiver of four plus years. I have had plenty of time to come to grips with thoughts like the one above, not only with my mom, but with my dad and sister, too.

So, as I sat alone, trying to figure out what just happened, a welcome ray of sunlight entered the room, and the tiniest rainbow I have ever seen appeared just beyond the tip of my nose. No joke! It was a real honest to goodness miniature rainbow … just like in the Wizard of Oz, only small, small, small.

Get the picture? Do you hear Judy Garland singing in the background like I did?

Somewhere, over that little rainbow, I saw mom, not as who she was, or who she will inevitably be, but as she is now. OK, so she is not the mom I knew, but you know what, she makes up for that because of who she is!

On any given day, or moment, she will tell you she is six, or ten, or twenty-one, but never, never, ever ninety-four.

When asked, she’ll tell you her hair is green, or orange, or pink. The only thing for certain is that it is not pure white, which it is.

She is determined and passionate about her desire to marry me. She ask me if I will or would all the time. I deftly change the subject by pointing out something shiny.

She refers to me as her boy or her girl. She uses these words interchangeably, but I can live with that.

Whether I am her boy or her girl is of no concern, what matters is she knows I am hers and that her never ending love for me is the undeniable foundation of our relationship.

The best is when arrive with a, “Hey Momma, Momma, and she lights up and ask, “Is that you, Tom Laughon?” That’s a day maker!

She is joyful.

She is funny.

She doesn’t cry.

She sings made up songs like no one I have ever known. And, when I sing, or we sing together, she claps her hands and rocks to the beat.

She holds me so tightly that I have pry myself loose from her hugs. And, if truth be told, there are times I want her to keep me in her grip forever. You can feel the strength and determination that has allowed her to take a leading role her entire life.

See the little rainbow? Hear the music? Feel the beat? Life. Love. Reflection. Refraction. Real. Illusion. Always a continuous spectrum colors.

There is so much to be grateful for that lies between the “Family members of someone with dementia grieve not only the loss of the person they know” part and the, “but ultimately the death of someone they don’t know” part.

The infinite memories and full spectrum of emotions mom triggers, the rainbows she continues to create … fleeting though they may be … are real and are to be treasured.

Somewhere over the rainbow … when sunlight encounters tears …

Get the picture?

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A Birthday Name Game

Posted on November 15, 2014 by Tom Laughon

2014-06-13 20.48.51A guest blog post by my wife, Melissa.

One afternoon this week after work, I walk over to visit Helen.

Just before I slide open the glass door on the back porch, I take a long, deep breath.

It’s not that I am apprehensive or feel uncomfortable … I’ve been observing caregiving situations for as long as I can remember.  My parents and grandparents have instilled in me from a very young age a sense of respect and responsibility for elders.

It’s that I need all the energy that I can muster when I’m with Helen.  At 94 (weeks away from 95), I’ve learned that, although at times she thinks that she is 6 and wants to marry my husband (her son), she has the fiercest instincts of anyone I’ve ever met.

She will shut you out or allow you in or lash out at you (accompanied by an occasional bite) in a matter of seconds.  I’m mindful of the energy I bring into most situations, but I am acutely aware of how critical the energy factor is when I’m with Helen. So, as I’m inhaling at the door, I assume the “me” that I have found to be most effective with Helen … it’s the positive (but not perky), the strong (but not threatening), the kind (but not weak), the cautious (but not afraid) and always respectful me that my mother-in-law needs to feel safe.  So, I take a deep breath and I assume that role … for her.

Helen is sitting in her kitchen at a beautiful pine table made by her husband, Fred (that if you don’t put a tablecloth over, she scratches obsessively and there are the indentations to prove it).  The kitchen looks all at once familiar, yet very different, as all around us are the new caregiver’s belongings and ways of organizing … essential and most appreciated, but seemingly out of place at Cheswick, Helen’s historic (circa 1796) home.

I never know when I start a conversation with Helen, whether I’ll encounter the quick witted and all-knowing Helen or the Helen that asks when someone is going to take her home.  But, thanks to a lot of practice, I’ve learned to be quick on my feet and meet her wherever she is.

Me:  Hi, Helen!

Helen:  Hi, girl!

Me (while hugging Helen):  Hi, Helen … it’s Melissa … I’ve dropped by to see you.

Helen:  I love you.  Your hands are cold.  Give me those.  (She proceeds to blow and kiss them until she deems them warm enough to let go of.)

Me:  Well, I have exciting news.

Helen:  What is it? (Helen loves excitement and has more energy at 5:30 p.m. after a full day at the adult day center than I did at 10 a.m. after my second cup of coffee)

Me:

It is officially the Laughon birthday season.  Are you ready for all the birthday celebrations?

Helen:   I am always ready!

Me:  Well, let’s play a game.

Helen:  Ok, I’m ready (she sits up straighter in her chair).

Me: I’m going to give you hints and you’re going to guess who is having a birthday on Sunday.

Helen:  This Sunday? Ok, I’m ready.

Me:  The first is on November 16thand it’s a boy’s birthday.  He’s funny, he’s handsome and he belongs to you.

Helen:  He belongs to me!?!

Me:  Yes, ma’am.  And, he’s a great singer.

Helen:  (says nothing, but closes her eyes in concentration and nods her head slowly)

Me: And his name starts with a “T”.

Helen:  A “T” …  hmmm … (more concentration and I think I see a little smile)

Me:  Do you know who it is or do you want me to tell you? (giving her this option balances out the fun of this game that she consistently finds engaging but gives her an easy out that she will often take if she’s not sure of the answer)

Helen:  I know who it is … can you guess?

Me:  I think it’s Tom.

Helen:  How’d you know! Tom Laughon, my boy!

Me:  Yes, Helen, Tom’s birthday is Sunday.  We should practice singing Happy Birthday!

I start singing “Happy birthday to you” at the exact time that Helen sings “Jesus loves me this I know” and I smile, give her a squeeze and join in “for the Bible tells me so.”  When we finish, I tell her after Tom’s birthday is Lissi’s (her granddaughter).

Helen:  Claps her hands together and says, “I know that girl!”

Me:  And, Ty and Patrick have birthdays in November.  And, after that … the next birthday is on December 25 … who might that be?

Helen:  Hmmm (closes her eyes again in concentration)

Me:  December 25 … Christmas Day

Helen:  Me … Helen Douglas Martin Laughon … my birthday is Christmas Day.

 

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